Endometriosis Cymru

A co-created website providing information on endometriosis: the disease, the diagnosis and treatment pathway in Wales and life with the condition

The endometriosis mandate within the Women’s Health Implementation Group originates from the November 2018 Task & Finish Group recommendations; ‘Endometriosis Care in Wales: Provision, Care Pathway, Workforce Planning and Quality and Outcome Measures’.

The project was led by NHS Wales and Welsh Government in partnership with Cardiff University, our creative partner Proper Design and Fair Treatment for the Women of Wales our patient involvement partner. In addition to ensuring the resources were relevant, informative and supportive for the patient and public communities, the resources were designed to help deliver on recommendations from the Task & Finish Group report in particular to:

  • Provide information
  • Expedite appropriate medical help-seeking
  • Support people living with endometriosis
  • Adopt will-building methods including

The project continues with optimisation and evaluation of resources developed during this endometriosis.

Resources produced by the Endometriosis Cymru project

  • Web Page

    endometriosis.cymru

    A web resource for any who wants to learn more about endometriosis; the disease and the diagnosis and treatment pathway in Wales. The website includes information for those living with the disease.

    Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA 4.0)

  • Web Page

    When? by Elizabeth Querstret

    Endometriosis affects about one in ten women. In Wales alone that could mean as many as 160,000 people living with this invisible disease.

    Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)

  • Web Page

    What? by Eliza Wolfson

    With endometriosis, cells are found where they shouldn’t be, and it’s common for sufferers to be disregarded or misdiagnosed.

    Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)

  • Web Page

    Where? by Tamsin Walker

    A comic based on the real life experiences of women with endometriosis that explores the common misconception that endometriosis is just ‘bad periods’

    Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)

  • Video

    One in ten: living with endometriosis (English)

    This film describes the experience of endometriosis from early symptoms through to diagnosis based on the words of real women living with the disease. The film was produced by Crow Black Films and Proper Design as part of the Endometriosis Cymru project.

    Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)

  • Video

    Invisibility

    A short film about the invisibility of endometriosis based on first-person accounts from people living with the disease.

    Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)

  • Web Page

    Endometriosis Cymru Me & You Empathy Quiz

    We developed the Endometriosis Cymru Me & You Empathy Quiz to help people gain an understanding of the impact of a condition like endometriosis on people’s lives.

    Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA 4.0)

Project Team

Publications